Every night around 8 p.m., my paralysis forces me out of my wheelchair and into my bed. My body is wearing out after almost 40 years of living as a spinal cord-injured quadriplegic. It’s a good time to reflect on the day as well as watch some TV. Not long ago, I flicked on a PBS special called “Innovation: Miracle Cell.” When I learned it was about new therapies using stem cells, I asked my husband to turn up the volume.
Paralyzed after a car accident, pretty 19-year-old Laura Dominguez looked up from her wheelchair and into my room through the camera and smiled. She had reason to. Recently she traveled to Portugal for an extraordinary operation that changed her life. First, Dr. Carlos Lima drew stem cells – her body’s own “repair cells” – from the lining in her nose, and then gingerly separated them. Those cells are like blank slates, able to turn into tissue that would “fit” into Laura’s spinal cord. Dr. Lima gently packed the cells into the damaged portion of her spine, and after three months of therapy, Laura was able to move her foot and regain a significant amount of feeling in her back and legs. Said Dr. Lima, “I will be able to say to somebody with a spinal cord injury, ‘Yes, you will walk again,’ as opposed to telling them life is good from a wheelchair.”
How ironic; me rejoicing in the success of another’s healing. Other success stories followed: a teenager with a punctured heart that was healed through a stem cell transplant from his blood; a little boy who no longer has cancer because of a transplant using stem cells from the umbilical cord of his little brother.
The same week Dr. Lima published his research in the Journal of Spinal Cord Medicine I picked up the July 24 issue of TIME and read “What a Bush Veto Would Mean for Stem Cells.” Rather than read the same line about embryonic stem cells being the Holy Grail of miracle cures, I read how “science has outrun politics. Adult cells, such as those found in bone marrow, were thought to be less valuable than embryonic cells … But adult cells may be more elastic than scientists thought and could offer shortcuts to treatment that embryonic cells can’t match.”
I and others with disabilities have been closely monitoring the debate between adult and embryonic cells, and we know there isn’t an embryonic cell treatment that heals even a rat – there are tumors, tissue rejection, genetic abnormalities and death; there are no miracle cures. Yet right now more than 70 medical conditions are being successfully addressed by adult stem cell therapies either in human clinical trials or human treatments. Laura Dominguez knows firsthand; she can now even walk a bit with crutches!
No wonder people like me are excited. True, many adult stem cell therapies are not yet bona fide cures, but so far, they have proven substantially more successful than embryonic stem cell approaches. That is why I am grateful that President Bush continues to uphold the ban on federal funding for embryonic stem cell research. Those restrictions are perhaps the only means of encouraging funding in the overlooked and less commercially viable field of research using adult stem cells.
Still, some people say we should wait and see what happens with stem cells gleaned from human embryos. Pardon me, I’d rather not wait. Besides, there’s something deeply unsettling about tearing into a human embryo for its spare parts. Is it really nothing more than a mindless clump of cells? Of no more worth than a potato to be used then discarded? I shiver when I hear politicians and so-called experts talk that way.
People like me are vulnerable in a society that disregards the rights of the weak, the infirmed, the unseen, and the very, very small. I don’t want to live in a world where the bio-tech industry sets the moral agenda. When we tamper with the essence of our human genesis – certain only of the uncertainty of our outcomes – we mock the God whose imprint we each bear, and we provide false hope to those whose hope sustains them.
I stand with countless Americans with disabilities who believe our cause is not advanced when human life is sacrificed in hopes of finding a cure. Our cause is uplifted when we take the common sense and ethical course to hope and healing. And if you don’t believe me, ask Laura Dominguez.
For more information about Joni’s thoughts on stem cell research, check out the new book co-authored by her and Nigel M. De S. Cameron, How to be a Christian in a Brave New World.
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